I think the condition should continue to be called CAH.  I think the term intersex should be replaced by explaining that some infants are born with, or some children develop ambiguous genitalia.  I think this should come after explaining the inability to produce glucocorticoids, and sometimes mineralcorticoids.  This would explain why there are increased androgens which sometimes leads to the ambiguity.   I am sure you will hear from others, who believe I am wrong, that I am trying to hide something by not using the word intersexed.  I simply believe that it is an incorrect term.  That it could cause uneducated (about CAH) friends/family to misunderstand the condition.  I would also urge you to encourage parents to educate themselves about the condition.  As well as education, they would benefit from support.  It would be nice if endo's/clinical nurses could mention this website.