I think Douglas pharmaceuticals are a subsudiary or part of Pharmacia here in New  Zealand.  Are you saying that they cannot make tablets here?  Let's not forget that so many things can go wrong with a suspension and sometimes what DID go wrong often was not the manufacturers fault---even before the changing of the ingredient.  I had heard of some being degraded because it was exposed to heat in transit and not transported right by the couriers.  This was back in 1992 just after Ashley was born in the UK.  Tablets are different arn't they?  They have a longer shelf life.  Can someone explain to me how something like that could involve my kid being any worse off?  He IS a guinea pig and has been since he was born because according to the Pub Med site, they are learning stuff and doing studies all the time in CAH.  When they run out of mice and they manage to get things approved in New's lab---who dya think will be the lab rat's then?  They need real live CAHer's for that.  They cannot even get their act together and make sure that these kids are treated appropriately where she is concerned from what I hear.  She may find a cure, but she is taking risks as they do everyday NOW treating these kids really.  Except understanding what steroids do, they cannot even monitor them correctly here (laugh--one blood tests we are entitled to this month and my son's 17 OHP levels are raised!) and  it is one beig joke to me to hear everyone talking about a cure.  I think I would be happy if they could even treat my kid properly and monitor him correctly at the moment.  I mean they KNOW what quality of treatment would increase his quality of life and lessen side effects of too much 17 OHP or not enough cortisol or too much cortisol, but they cannot be bothered to even TRY to implement such.  So why should I trust them to stick some genetic stuff somewhere and do the job right?  Which kid is gonna go first?  Only pure laziness stops them from improving the quality of these kids lives at the moment.  Doctors, Drug Manufacturers, Hospitals the whole LOT!  None of them are excluded.  Everything they do at the moment here for Ashley is an experiment in my opinion and they are doing stuff that I do not want to be done to my child. Neglecting his care in every possible way.  I KNOW what quality care is and that it would be better for him, but because no one can isolate ONE quality of care, my sons doctor stuffs around and does as he pleases.  When I ask for a new one, I am told they don't have one at this hospital that understands his condition enough to provide expert care.  That's a joke---the guy doing it doesn't seem to do THAT good a job either.  Then when I ask for a refferral to another hopsital, of course nothing is yet done--we are still waiting for a card or a reply two months later.    Sorry to sound so cynical about the gene therapy, but I would just like for ONCE that they perfect the current treatment before they move onto the next experimental phase here.  I mean it's like starting to decorate one room in your house and when your half way through it starting on something else.  Nothing EVER reaches PERFECTION!  People will ALWAYS need steroids, because even if they find a cure for CAH, Addisonians or adrenalectomies who are stuck with other problems that cause the same thing---and it is unlikely they will cure that!  We would not be wasting our time to have them make 1mg pills and I could never consider it guinea pig territory when it is quite literally foolproof making pills.  Neither would we be wasting time perfecting current treatment.  My kid has not got 15 years---by that time his long term height will have been seriously affected and side effects ill be his problem if these doctors do not start doing things right by these kids now and if the gene stuff does not work---then that would be 15 years down the tubes or wasted---back to square one trying to perfect the half perfected treatment!  

Can I just say that I wrote by myself.  Thats all you guys need to do.  Write individually and just write to the TOP of the company.  Find out who the head poncho is and just do it.