They rediagnosed Jake in November as a salt waster.  He had a high renin level that day so they said he must've been self medicating all along by craving foods high in sodim.  They also said we were lucky he never had a crisis.  He's been sick before too with regular kid stuff like the stomach flu, ear infections, etc.  He is showing signs of over suppression right now.  He's very hairy all over.  Carol and Val are working on that with me.

I agree with you about having a CAH role model, not to look up to necessarily because we all make mistakes, but it's neat to see that people with CAH lead normal if not extraordinary lives.

Just Jake (3 year old) and Savannah (4 month old) have SWCAH.  My eight year old daughter Morgan has never been tested because she has a different father.  They said it was highly unlikely that my ex husband also carried the defective gene because she didn't present at birth with any differences. 

On the side.  What part of Houston are you in?  I was born in Pasedena at Memorial Baptist S.E. hospital during hurricane Fern.  On a side note, I am ever so greatful my parents didn't name me after the hurricane.  We lived in Friendswood for 3 years on the Pearland side by the Pizza Hut, then moved to the Clear Creek side for another 5 years.  I have maternal aunts and uncles in Sage Brook and Sage Gate, and a grandmother in Dickinson.  My dad worked for IBM and NASA on the shuttle for 17 years.  He did the scheduling.  We both were members of the Bay Area Running Club for about 3 years (over by NASA).  Any of those places sound familiar?  We moved to Dallas/FT. Worth shortly before my 9th birthday, and my parents are still there.  I moved to Oklahoma and DC after that and then Arizona.

Thanks for checking on Jake,

Adina