Just have something to tell you, we fly from Canada to Washington D.C. two times yearly, and had never had a problem but was  very nervous after Sept. 11.  We got a note from Ped. and  no one asked us a thing.  We also had to carry other needles because Nic. has to take 547X everyday.  It is also an injection.  We had no problem with either, but better to be safe than sorry.  Would love to hear from anyone else who has a child in the study at NIH in Bethesda Maryland.  Our son Nic is 13, was diagonsed at 10 days old.

cbrendkent@hotmail.com to send a message  thank you