Dear Carol and all,

I called the chair of the event, Dr. Walter Miller,  and tried to get an invitation, but was very nicely told that it was by invitation only and that so many physicians wanted to come, but they were keeping it to the select group. He then invited me to submit a memo of parental concerns, which I sent off to him last week. He told me he would use it in determining the agenda and subject matter for the small group workshops. The purpose is to try to come up with consensus guidelines for treatment of CAH given the disagreement in treatment protocols within the field. I have asked Dr. Miller twice for the date and guest list, but he has not responded yet. Don't worry, I don't give up easily!

I know that the following doctors/professional are invited because I have spoken to them--of course, Dr. Miller, UCSF (peds endo and biochemist doing research on cortisol pathways and synthesis); Dr. Garry Warne of Melbourne, AU, peds endo; Dr. Sheri Berenbaum, U. Pittsburgh, psychologist; Dr. Maria New, Cornell -NY Presbyterian Hospital, peds endo; Dr. Brad Therrell, the director of the National Newborn Screening/ Genetics Resource Center, Austin, TX; and I was told that Phyllis Speiser, peds endo, North Shore Med Center, on Long Island, NY is the co-chair of the conference, but I have not confirmed this. I will post the list if (when) I get it.

Carol, can you email me off the board? I want to tell you something concerning our earlier correspondence. Things are changing.

Best,

Kelly

Kelly R. Leight, Executive Director
CARES Foundation, Inc.
(Congenital Adrenal hyperplasia Research, Education and Support)
973-912-3895
866-227-3737 (toll free)
email: kelly@caresfoundation.org
URL: www.caresfoundation.org
Disclaimer:
Any communication from CARES Foundation, Inc. is intended for informational
and educational purposes only and in no way should be taken to be the
provision or practice of medical, nursing or professional health-care advice
or services.  The information should not be considered complete or
exhaustive and should not be used in place of the visit, call, consultation
or advice of your physician or other health-care provider.  You should not
use the information in this or any CARES Foundation, Inc. communication to
diagnose or treat CAH or any other disorder without first consulting with
your physician or healthcare provider. Any referral to physicians is
provided as a courtesy only.  CARES Foundation, Inc. does not specifically
endorse or recommend these physicians.