Re: growth hormone shots
2/3/02 4:59 PM

Hi Carol

   Thanks for writing to me first of all.  My daughter was not told anything of the cost of the shots so she will have to find out about that.  I talked to her earlier about his meds and here is a list of what he now takes  0.5mg. florinef once a day,  2.5mg of cortef twice a day and prendisone 2 mg everynight and on Mon. Wed. and Fri he takes 2.5 mg.

He was diagnosed with CAH when he was 5 weeks old and almost died when his peditrician put him in childrens hospital and now of course he sees an end. doctor as well.  He is 5 years old and has stopped growing and is real chubby as he has a lot of trouble with weight.  He is 3ft10in tall and weight 68 pounds.  Very hyper also all the time. And seems to tire very easily. 

I would appreciate any information you can help her with as she gets very depressed as he is sick a lot he has had strept throat 6 times in two months so the doctor wants to remove his tonsils and she is worried about that have you know anyone with this to have surgery and did they make out okay.

 

Carol
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks