Dear Carol

  Sorry about what just happened something went wrong with my computer for a minute.  First of all I would like to tell you how much I appreciate your help.  I know my daughter appreciates it greatly.  I dont want to sound stupid right now but I will say that he goes to the doctors every three months and his levels(am not sure what they are called)  as my daughter just says his levels are always real high.  And it seems like when they are high like that is when he is sick a lot. Then they readjust the meds again.  Thats all they do continuesuly so he is always on a different dose do all kids go through this?

You certainly have done your homework on this disease I think sometimes my daughter takes the word of the doctors and does not question it as the one doctor is supposed to  be tops in her field but it seems like she should be questioning this much more that she has in the past and I think she will feel like it also when she reads what you have written.

I agree with you he was growing very nicely but his bone age is 9 years old which has her greatly concerned.  But the in the last 5 months he has not grown one bit and so thats why the doctor suggested the shots.  She wants to go in and talk to her doctor but he gave her a sheet of paper with a few  medical terms on that she did not understand and she asked to come in and talk to him and he couldnt understand why she didnt understand the sheet of paper he had given her.  I read it and it talked more of cancer than anything and she asked him about that and he said it will not cause cancer because she said if that were her choices she will pass and have him 3 foot tall.

Again I thank you somuch for writing to me and will keep writing with questions if you dont mine as everytime I get off the computer I think of something else her and I have talked about that I have not asked you.  Thanks Carol