Dear Carol,

I gave all your information to my daughter today and she was very concerned that maybe they have had to much faith in his doctor and not done enough research themselves.  I told her i would call him and ask if they could come in and have a conference with both his doctors and find out just what the story is. 

You were right on the meds he is taking a half a tablet not 5 tablets that was my mistake.

We live in Lockport New York and she takes him up to Childrens hospital in Buffalo which is supposed to be a good hospital.

As far as the doctor talking about his growth that is talked about all the time as he has had problems with growing to fast right along and all they have done is try to supress it and it did not work until now and he has stopped growing instead of slowed down.  I will  write more when I talk to my daughter as Im sure she will have more questions for you if you dont mind maybe you can get her on the right track and start researching some of this self instead of taking the doctors word for everything.

thanks Carol