hat we have to pay for any other tests to be run on top of 17 OHP and renin here.  Yet in writing after a meeting in November it says the others will be run when the 17 OHP indicates loss of control.  Can someone please find me a site or info that actually defines the staement "Loss of control"and exactly what the outer parameters of that is. 

Apparently if we want any extra tests done now we must pay for them.  This is in a letter from the HDC after all the lack of care for Ashley.  They have totally skated over what has happened to him and seem to support that only 17 OHP and renin is run.  This is although they FUNDED such fully prior to 1998 and then suddenly stopped performing these tests without a good reason for such.  I have further complained to the HDC and asked them to hand the case to the Medical Council here due to all that.  However, I really want an official explanation that defines the above.  It is my only way I feel of really making them understand that when a childs 17 OHP results come back at 88nmol that that is over and above the nromal ranges and that really all these bloods need to be done in those situations to make sure that they are not missing something.  Especially when they all used to be run at the same hospital when he was in and out of the ranges prior to 1998.