How sad!  Keep in mind that sometimes the tests for CAH in pre-mature babies are not accurate. The only way to tell for sure will be the genetic testing done by Dr Maria New. I hope you have another baby soon. And your first child - Andrew is still alive in your heart. Our second child with CAH died at age 2 from an adrenal crisis - Jessica. I got pregnant the next month and had Adam. He is three years old now but a day does not go by that I don't miss Jessica. I now have Anthony - he is 7 months old (and big brother - Stephen - he is 8 years old).  CARES - has posted a picture of Jessica and other lost to CAH - in loving memory. My prayers go out to you.  

Kelly R. Leight, Executive Director
CARES Foundation, Inc.
(Congenital Adrenal hyperplasia Research, Education and Support)
973-912-3895
866-227-3737 (toll free)
email: kelly@caresfoundation.org
URL: www.caresfoundation.org