HI Tina and Michelle,

I will try posting this again. I don't know what happened to the previous post. Anyway, I will be there! I am the one that you RSVP to. I had wanted to put something like this together and I was planning on doing it on my own. Then I spoke with Kelly and she said that she wanted to do one here as  well. She had all the contacts so I thought that would be a good idea. Remember though, when Cares  goes  home to the east coast, us Texans will still be here.  Of course people from all over all welcome, but original plan was to have a support group closer to home. A group that we could call upon for support and education. 

Carolyn Scruggs was kind enough to send out the invitations for  me.  I was trying to contact  everyone myself by phone but if you didn't request your name to be on the list for other parents to contact, I didn't have access to it. So that is why Carolyn agreed to help.

If you can, please come. Not only will you maybe learn something you didn't know but you will  possibly be of help to someone else. For example, I have had several people who have called to rsvp because they don't have access to a computer. They were very excited to come. In our conversation I would ask them what kind of CAH they or their child had and they didn't know. Not only that but one lady who was pregnant wasn't even aware that dex treatment exsisted. This is in Houston!! Come on, the medical community should be better than that. Why do we all get the minimum information? It's a shame!  I felt good that at least if they didn't come, I had already given them some information that would help their child.

Of course the friendships that can be made are another great reason to come. Especially when my son is a teenager, I want to be able to have local contacts that my son can talk to or that I can talk to for support.  This message board is great but sometimes it is nice to have local support.

Yes, the CARES Foundation is the "person" putting on this workshop but I intend, with or without CARES, to keep this going as a yearly event. I would appreciate you all coming to support one another and CAH. The more attention we  can give it the more mainstream it will become and hopefully more attention will get ....a cure....more screening... better treatment....who knows!!

Ok, I'm done promoting. Please let me know if you do plan to come. I am trying to get some sponsors and I need a somewhat accurate count.

Thanks,

Sandra