I do plan to go, even if I can't find anyone to go with. Although I would love to have the company. I want to bring my ten year old daughter even if her test don't come back positive. It is true that we are not told the details of our conditions. I did not know that I had a less severe type  up until I had access to the internet, all I knew was CAH and not that there were different forms of it. I knew nothing of an adrenal crisis, . Everything I've learned has been from what is provided to me on the internet I am not from Texas originally, I really don't know my way around Houston, but I do plan to go. I have no family here so it is not so easy to just take off driving to a city 2 hours away. So if anybody is nearby and wants some company,  please let me know, Thanks, Michelle