Dear All,

This is the first message I have ever posted here.  I recently adopted a little girl with salt-wasting CAH.  We have spent a tumultuous first six months with two emergency surgeries and lots of meds ups and downs. I feel pretty confident about our medical care, but I do get concerned about what is to come.  My baby has very big cheeks -- will these always be there-- even into her adult years?  (She is on a pretty low cortef dose, so I am not sure if it is even cortef-related.)  Are there a lot of teenage hormonal/chemical issues?  Will we be facing other possible symptoms throughout her life- mood-related or otherwise?  Are kidney problems a possibility?  A medical person I spoke to said often CAH girls are lesbians -- is this true?  It is very hard to get complete answers as our doctor is  busy with  many patients, so I thought I would ask some of you out there for any thoughts or advice. 

And, lastly, I have had a lot of trouble finding a support group for parents of CAH kids in my area (LA)..havent had much time to look too hard -- but any suggestions of an easy way to find one?

Thanks for any help for a tired mom....

Stephanie