SandraHi Stephanie,
Congratulations on your new addition!
I am, along with the CARES Foundation, putting together a workshop for families with CAH. It is going to be in Houston. I don't know where in LA you live but you are more than welcome to attend. I will email you an invitation. Everyone is welcome to attend. You don't have to live in TX but my main goal for this workshop was to form a local support group. Actual people that we can meet and talk to in person. I want to try to keep this going as an annual event and possibly a newsletter or two for those who don't have access to a computer.
So, please come. Oh, by the way. I have a 9 month old who is a SV CAH. He had really puffy cheeks at around 4 months old and I thought he was just fat! Turns out he was way oversuppressed. He is fine now and those cheeks are back to normal.
Please feel free to email me anytime.
Sandra