Re: anxieties about baby with SWCAH
3/27/02 1:12 PM

Hi Stephanie,

Congratulations on your new addition!

I am, along with the CARES Foundation, putting together a workshop for families with CAH.  It is going to be in Houston. I don't know where in LA you live but you are more than welcome to attend. I will email you an invitation.  Everyone is welcome to attend. You don't have to live in TX but my main goal  for this workshop was to form a local support group.  Actual people that we can meet and talk to in person. I want to try to keep this going as an annual event and possibly a newsletter or two for those who don't have access to a computer.

So, please come. Oh, by the way. I have a 9 month old who is a SV CAH. He had really puffy cheeks at around 4 months old and I thought he was just fat! Turns out he was way oversuppressed. He is fine now and those cheeks are back to normal.

Please feel free to email me anytime.

Sandra 

Sandra
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