Thank you to all of you who emailed or messaged back....it has been a long road for my husband and I , and hearing from some knowledgeable parents was a breath of fresh air....In answer to one question, we were lined up for the adoption before the baby was diagnosed with CAH -- the diagnosis came soon after she was born, and we decided to stick with our original plan, as we felt we WERE her parents and could not leave her...

She has had many many crises and she is only 7 months old, so perhaps that is why her face is so large....she is on a pretty low dose now, but it has been ongoing extra meds from day one...

I appreciate the invite to the seminar in Houston , but as I live in Los Angeles, not Lousiana, it is a bit of a trek...   :)

thanks to all -- would love to keep in touch....

stephanie