Just want to add my 2 cents in here, because I had a child die from CAH (3 year-old twin daughter), surviving twin also has CAH, both had the 21-hydroxylase salt-wasting form.  If you could please devote a couple paragraphs of your study results to addressing how fatal CAH is, I and countless other CAH parent’s would be greatful.  Seems medical and research people in society are so set on focusing on the gender and sexual issues related to CAH - that they give little or no attention to spreading the word about how fatal this condition is.  Since my daughter died nearly 3 years ago, I have done an incredible amount of CAH research and all over the world.  When comparing gender issues of CAH to the number of CAH people who have died - I find that about 20 CAH people died for every 1 CAH person who suffers from some kind of gender or sexual issue.  But, can’t seem to change this in society, no matter how darn hard I work at it ... society just seems to love addressing the sexual issues of CAH versus the death issues of CAH.  CAH people can suffer something called an "adrenal crisis", also known as an "acute adrenal insuffiency."  Our CAH children can vomit even once, or run a fever over 101 - and they can die within even 8 hours, it happens so quick, usually overnight they get into trouble, and we find them in a coma or other near-death state.   You might find more of the information you are looking for on an adult CAH board, most of us have young children or even infants.