There was NEVER any thought about how the Dex would make me feel, that wouldn’t matter to me. I am looking at the big picture, the future of that child his/her offspring and so on.  There has not been enough long term research on the effects of Dex on your family in the next generation. Therefore, the ratio that our chances of having an affected girl being 1 and 8, the well thought out decision of not taking Dex fit our lives. Dealing with an affected daughter will be our concern and our duty to make her as comfortable and to help prepare her for any physical or mental discomfort. We are intelligent people with many resources to help her in any way we can.  So, again, my original question was that if there was anyone who had experienced the same situation, I would love to hear from them!   Thanks Jennifer