I have not been posting on this issue in public, but I have spoken to a few on this board who know that both of my SWCAH kids have suffered as a result of the suspension problem and my daughter had a terrible crisis during the time she was on the "bad" suspension.  I keep track of my kids numbers and levels and am very vigilant, and after noticing a pattern, not only with my kids, but with others I had talked to, I decided to push my endo for the tablets.  He was hesitant to switch to the tablets, but I had been hearing rumors about the reliability of the suspension being suspect, and I eventually had to get my pediatrician to write the script because my endo was doing nothing.  We have just now gotten our levels back in line after being off the suspension for 2 years.  There is more than one family who relied on the suspension in the time of a crisis, and who lost a child-I have spoken with some.  And even after the suspension was recalled and no longer on pharmacy shelves, there were still a few endos unaware of the problem as well as some pharmacists I had encountered.  I had heard that Upjohn was conducting their own studies on the suspension during this suspect time to make sure there was really a problem before pulling it from the shelves, when, in the real world, many of our children were under-medicated while we waited for the results of these studies.  I heard that it was found that in order to properly re-suspend the medication in the suspension, one would have had to shake the Cortef bottle for 7 MINUTES!!!  If this is true, how many of us remember seeing that bit of info on the bottle?  Not me.  My kids struggled for so long and were undersuppressed for so long and have advanced bone age that cannot be corrected and I was scared in a few instances I might lose one of them because of their inability to respond to their "stress" doses of suspension.  My heart  goes  out to the families who have suffered a loss.