Thank you Aimee for your point of view.  I cannot walk in your shoes.  Did you have genetic testing from Dr. Maria New office to confirm the genetic type of CAH that you carry? That was my point.

And yes - I would have dozen CAH children... because I am sure that you would agree it is better to be born with CAH than not at all .... CAH is treatable and my CAH children are very normal.  If my CAH daughter was alive - I would have hoped for a good life for her. 

I read in the CARES newsletter  an article that every woman with CAH or a carrier of the CAH should read - "New Report on Pregnancy and Non-Classical (Late-Onset) CAH"  - An Abstract from Pub Med, Ned Tijdschr Geneeskd 2002, Feb 9; 146 (6); 268-70.  This is a quote:

"Preconceptional advice by a clinical geneticist is recommended, because of the risk of an affected child".

Again = a clinical geneticist  - not just a regular doctor or OB doctor.  That was my point.  Dr. Maria New is an expert in this field - I am glad that I got "her" advice.  She saved the life of my son born in 1998 - when he was on liquid cortef - she adviced my ped endo to switch to the pill and put him on the right doses for salt and medication.  Also having the genetic information - also is important to my children health and health management.  She is an expert in this field.  No  - you don’t have to drive or fly to her office. Just have your doctor conference with her. Why not ask the EXPERT???  Why not get the best advice you can???  Or the best surgeron? I know if my daughter was alive now - I would take her anywhere in the world - if I would have only know my doctor was not right. I just didn’t know. I trusted the doctor. ... and look what happened!!

 I guess if you ask enough people  - then you get the right answer (or the answer you WANT to hear), huh??