Dear Anonymous:

I was just curious as to why Jennifer choose not to take DEX while mothers in the other post have decided to take it. I am the anon from above and there was no ill intent meant for anyone. I do think that this has been a lively thread that I’ve gained so much insight from.  

Writing that I don’t have such and such birth defect doesn’t make having CAH hurt any less. Although, I do understand your ideology that by thinking about someone that has it worse, it is suppose to make you feel that you can handle what you have. The answer to your question is that I prefer not to have any birth defect at all.

I do tell my self that it could be must worse but it could also be much better and I also recognize what having CAH did to me. I used to minimize how I felt about my experiences with CAH and ended up burying a lot of feelings that only lead to a nervous breakdown many years down the road.

The nervous breakdown is 7 years in the past and the anxiety and self destruction stopped as soon as I acknowledged what it meant for me to have CAH. My parents would tell you Aimee is fine..." look at that smile." I would talk to them about the CAH and they would listen and console but then really they weren’t born with it and in the end, I carry it with me all the time not them.

Later on, I acquired my records. In one of the letters the doctors wrote that I was happy and bubbly. This was during the same visit that I told the doctor that my chief complaint was about  excessive hair on my face. No one is happy and bubbly about stuff like that. Everyone wants to see what they want to.      

Dear Roberta:

I’m a long way from home and I need to look at some papers at home before I answer your question.