When Jonathan was born there was a counselor who came by after he was in the Pediatric ICU, but that was more because of his critical condition than the CHA. In fact that was several dasy before they discovered the CAH. Other than the Pediatric Endocrinologist’s office we reveived no official counseling or support regarding CAH, that’s the reason I sought out info on the internet and discovered the earlier version of this board run by Jim and Debbie.

You raise a good question. I wonder if perhaps the various people working on info and support could team up to produce a brochure to be distributed to hospitals and Ped Endos? It could contain the basic info plus links to the various sites offering support and education.