Adina,

Thanks for your reply.  I, too, am having my family tested at Cornell which is why I was wondering where you had gone.  Is that where you and your family are being cared for?

I am 46 years old and known I had LOCAH for 15 years.  I had 2 children before I was correctly diagnosed and one after dx.   I have been very lucky in terms of the symptoms of LOCAH.  All my children were conceived without medical intervention and hopefully the DNA will show no inheritance of this disease. I never felt the need to treat my LOCAH until recently.  The need arose not because of the typical sx but more out of indications of adrenal deficiency.   I started treatment and I am having issues with it.  I currently take Hydrocortisone -10mg at 7AM, 5mg at 4PM.  Since being on the meds(5months) my testosterone levels are now high, my acne is much worse, and and I have BO.  I recently went to Dr. New’s clinic for a second opinion and they want to but me on dex(.25) at bedtime.  I am not sure I want to try this.

Anyway, I just was curious about your experience.  You sound very knowledgeable and it is helpful to hear other’s experiences especially when they are well informed.  If you would like to email me directly, feel free.  I hope this is ok to do on this site.  My email is sheldon@genevaonline.com. 

Thanks again

Denise