To Adina: Forgot to ask in mention in post above
Jun. 21st, 2002   11:32pm

I can count at the moment on one hand how many children are on this regime whose parents are using these boards.  That is scarce, and since there are no long term studies, we are all dependant as you know on feedback from eachother.   You say that you were able to cut back on your sons dose but not by how much or how long ago.   Could you share that onfo here or email me.  Since my son has been on the regime over 7 months now, and we have not been so fortunate in having an understanding Endo (see the new one on Monday) and therefore we would certainly benefit from seeing where and how much (percentage wise) other parents have been able to cutback--(would give us a clue where to start) the doses. 

If you could email me with that information I would be grateful.

Anne-Marie

Anne-Marie
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