Yes - very tired - look at all the typos in my messages (very common in my writing anyway -  ha ha ha). 

I can’t image why you do not want Dr. Maria New to check your blood too and your child. 

  It would confirm the type of CAH that you say that you have or he might carry.  Remember my message - he could be have no symptoms and develop CAH later in life or very mild CAH - Don’t you want to know now?? Even if your first child doesn’t have CAH - you should still have his blood checked to see if he is a carrier or whatever. What if he wants to get married and have children - he needs to know.

 We had my blood, my husband’s blood and our first child with CAH - ALL CHECKED.  That is what is recommended.

I think that it is very unlikely that your husband is a carrier or has CAH but you never know.  Do you think your parents would get their blood tested to see what type of CAH they carried.  My parents are passed away but I sure if they were alive - they would have done it for me.  Before my child was born with CAH - I had never heard of it.

Low testosterone is exactly what is described as a symptom of 3-beta hydroxylase deficiency CAH.  So guess 57 is a low number or maybe low-normal.  What kinds of medications do you take for your CAH? I am only familiar with the type that my children have - the classical salt wasting CAH.  Since 3-beta are also have incomplete sex hormone synthesis... what do they do for you?

Are you sure that you had proper diagnostic assessment for CAH? Maybe you should go to see Dr Maria New or another expert doctor.  I don’t under that labia thing.  Did you have a fused labia and a doctor bloted up with the surgery? I know that there are some real butchers out there and doctors that have business doing the surgery but just want to try it out.  Did you ever consider surgery to repair it? Apparently it doesn’t bother you (good for you!). You sound very happy.

Polycystic ovaries is common is the untreated CAH (classical and the non-classical) females.  I am not sure if it is the the other types of CAH.  That is due to the increased androgens (male hormones) but you say that your testosterone is very low.

Make sure the doctors checks your plasma renin,  testosterone, and androstenedione.  MOST IMPORTANTLY - 17-OH Pregnenoione (for the 3 beta dehydrogenase) and the sodium levels in your blood.

The most important for 3-beta is the 17-OH Pregnenoione blood test.

The other tests are for the classical salt wasting CAH and the non-waster or non-classical CAH types. But I am just wondering if they did the right diagnostic tests for you and how they compare to the salt waster.  The classical salt waster  test MOST important is the 17-OH Progesterone  which is very different from the 17-OH Pregnenoione.   Two completely different kinds of tests.

Anyway - hopefully no typos this time. Feel free to email me directly if you want. robertapre@msn.com or call me 703-370-4611 (at home) at 703-687-7357.

Again - great news about the Valentine BABY!!

And you you need finanical assistance for the medical treatments (surgery, genetic testing) there are program out there.  CARES - non-profit support group for CAH. Can help you find a solution.  Also I posted a list - travel assistance for medical treatments - if you didn’t see if, let me know.   There web page is listed under the banner - click on people and then on CARES.