Anne-MarieBebe,
I do hope that this is not all confusing. All I am trying to do here is point out some common sense things that may be a problem and also this may have contributed to your last baby being too small. My concern is that if your testosterone levels are high, that that is not what "should " be happening in pregancy for you. Indeed to carry the baby and have a healthy pregnancy to full term it has everything to do with what your hormone levels are doing. Cortisol (if your search and study this) is something that is much higher in pregnant women than it normally would be. As the pregnancy progresses, the levels climb higher. They are at their highest at full-term and then higher still throughout the labour to help your body cope with the stress of labour. In fact it is commonly known that pregnant ladies with CAH need to have their doses raised throughout pregnancy anyway. Not the same as pre pregnancy--but raised. They need to be monitored more than the average pregnant lady to keep a handle on the hormones.
I have to say here that the ONLY thing confusing me here in this thread is that if you have 3 beta type CAH and that type CAH does not cause high testoserone levels when untreated or inappropriately treated, then I am wondering WHY your testosterone levels are high and why your Doctor feels that this is ok?
I derived from some posts put here by other’s that somehow your Doctor was actually advocating dex treatment. Other’s seemed to be implying that somehow you had to sit down and convince your Doctor that this is not the same type of CAH as 21 Hydroxylase deficiency and that you do not really need Dex treatment. Personally I am going more by what you say about the raised testosterone levels and discarding everything else (right down to the "type" of CAH you have) because what matters here most in my opinion is what the fetus is exposed to in utero (not HOW it is exposed) if you are questioning pre natal treatment to make a decision. That should be done with FULL knowledge here of what can happen. If you are content to accept whatever God sends to you where your child is concerned that that is a good thing. That means no matter what is advised here---it isn’t going to affect your attitutude at birth. I just did not want you to base your decision around the ideas some had put forth that it is NO big deal if you are the one with elevated testosterone here and NOT the baby. That is a natural concern, because that inevitably is going to have some contribution to how you deal if it does affect your child. Especially if we have had this discussion and you derived a safer sense of well being from it. Would your choice have been different or BE different if your baby would be affected by high testosterone is more the crucial question? If it would not concern you and you feel you can acceot the consequences, ten that is cool. You can forgo dex treatment, but what I feel some are forgetting here is the way that cortisol levels ARE during regnancy and that during pregnancy is not the time to go without treatment. Treating pregnant ladies for themselves is different to treating a pregnant lady to avoid virilization in the fetus. Somehow I have a feeling that what happens for you endocrinologically speaking is everything to do with the health of your pregnancy and the ability to carry that baby. They treat with HIGH levels of dex to have enough pass over to the fetus and avoid virilization. On smaller levels, they can treat just you and make sure you have a happy healthy pregnancy and carry to full term.
Reading your post, I am getting that your baby in the last pregnancy was born too early. Normal full term weight has to be over 5lbs and anything under is considered premature--that is why I assume that. You need to consider if your having no dex treatment or any treatment that the hormone imbalances because of that may not be exactly condusive to sustaining the pregnancy itself. Especially if there are high inappropriate male hormones. This does not just affect fertility. This is what I was concerned about. i was merely deriving an impression that you were not being treated at all for your CAH (whatever type) and showing some concern. I don’t wish to worry peopl, if anything I see a good deal of sense in being honest with my thoughts on this as I feel you do need to be treated to some extent--even if it is only to keep your hormones in check here for the sake of an healthy pregnancy. Please forgive me for making any errors i.e. assuming you are not taking meds and going over kill. Just my way of showing concern and trying to help you.
It’s good that you ask questions Bebe. I just geuss I am trying to put some questions there for you to ask next time you see your Doctor.
Best Wishes
Anne-Marie