Hi Maureen,

Can you remind me how your daughter was diagnosed. I think I remember talking with you but I have "talked" to so many people..... I would like to compare notes with you. My son is also SVCAH and I have a feeling that his case is also very mild. Did you ever have any genetic testing done? If I have asked this before, sorry, :(

About dosing, I started out giving my son cortef two times a day then switched to three times a day. It just made more sense to me. His 17ohp level was very very high at the last check up. Everything else was perfect. The endo in NY seems to think that the high 17ohp was incorrect. Well, it’s hard for me to know what to do. 3x’s really makes more sense but I guess it’s all in theory. Kind of learn as you go, unfortunately.

Thanks,

Sandra