Welcome Shannon,

I have a 13 month old son with SV CAH. I must say that you are a very strong lady. It took me a very long time to get over the diagnosis and my son was never near a crisis. He was caught by newborn screen and didn’t start his medication until he was 30 days old. However, he is not a saltwaster.

I , like the other, are always willing to answer question for you. I’m glad you found this.

Sandra