I know how you feel.  I had problems with my salt wasting children too.  Looking back on it now, I wish that I would have changed doctors from the day one!!  I was also at my wits ends.  Now I have a really good regular pediatric doctor and a good pediatric endo.  Both are important!! 

If you need to talk - call me or email me!! 703-697-7357 at work; roberta.pre@msn.com (home email).