Deb LHi! and Welcome! Until I found others on the internet we were alone too. This board is GREAT!
My SWCAH son is now 17 1/2 years old and doing just fine! He has been one of the lucky ones in that he has never had problems coping with illnesses or regulating his daily dosage. We have the injection kit and luckily have never had to use it. Feel free to e-mail me.