carolHi Rebecca
I have a 13yr old daughter with 17h saltlosing cah, she has had
surgery when she was 9mths old if u would like to chat and ask
questions id be glad to help in anyway i can i only know the
generel info on cah and i can only give my experience of having
a daughter with cah, iam in no way an expert or a doctor but i
will be willing to help in anyway i can.
My email address is Mcdowallmcd@aol.com
carol