robertathey need to do a blood test
11-deoxycortisol for 11-beta CAH
17-OH Pregnenoione for 3-beta
17-OH Progesterone for classical and nonclassical 21-hydroxylase - salt wasting and non-salt wasting
Again there are many types of CAH:
21-hydroxylase - the most common
11-beta hydroxylase
3-beta hydroxysteroid dehydrogenase
17-hydroxylase
20-hydroxylase
20 hydroxylase
18-hydroxysteriod dehydrogenase
other type of CAH include cholesterol desmolase deficiency (lipoid hyperplasia) and corticorsterone methyloxidase type II
Maybe you had something other than the 21-hydroxylase the most common and the kind that most the people on this board are familiar with... the doctors confused the treatment...
And if you had a type that needed need florinef (you were not a salt waster and had blood pressure) the treatment could have made you feel sick... too high blood pressure...
Again - how is your blood pressure? What is your sodium levels looking like?
http://www.medhelp.org/nadf/nadf9.htm
This web site lists another adrenal problem...