Brenda Smith ( Nic’s Mom )Diane:
That is so sad, How old is your son?? before we went to NIH I had no idea what that even was....... He has an ultrasound every 6 months and so far so good. But how come we never had an ultrasound before that??? Do they not all know about Adrenal Rest??? What happens to the rest of the kids???
Do they have to do any surgery??? Do they remove the adrenal rest stuff??? you said it is usually benign??
Feel free to e-mail me if you like.......
***HUGS*** Brenda