Sorry, I don’t know how to convert from ug/dl to ng/dl---everytime I ask the same question myself I just get the conversion figures and not a run down on "How To" so it would be neat hearing how the conversions can be done for each of the bloods from those that can do it instead of the answer only because I am sure parents would like to figure these things out for themselves. 

I’m sure it isn’t too complicating that we cannot all learn it when we want to....

Have asked the same question heaps of times myself and it’s always the same...no learn anything

Going back to your problem.  In the metabolic pathway cholesterol is converted to Pregnenolone--->Progesterone--->17 OHP--->DHEA--->Androstenedione (that order).

Of course there are other enzymes in between those but I am just trying to give you a rough idea what is needed at each step.  So if 17 OHP is low and cortisol levels are too high, that is meaning that anything coming after the 17 OHP in the metabolic pathway is low also.  Looking at the mineralocorticoid metabolic pathway though, it is possible for cortisol to be high but aldosterone be low and for dhea to be made in that direction. Didn’t they drop your babies dose of florinef a while back?  Just wondering there...

I think you would be best to get the 17 OHP back into the normal--middle ranges and everything else follows.  In Ashleys situation 17 OHP is high but Androstenedione is low and everything inbetween that they have not tested for could be high theoretically with a 17 OHP number of 95nmol/L*  That was my concern reall as high levels of dhea (weak androgen) are just as damaging where growth acceleration are concerned.  It is in this direction that they need to be doing the dhea blood tests really.  But have not--so I am kind of in limbo because I know his levels of dhea’s could have been high at the blood tests done in June and he on the verge of making androstenedione anyhow.  As it took a month and half to get those results back--I am certain actually.  I am just tired of Doctors not taking the full range.  

I have another blood form here for the same tests and no dhea on it---and to be done at 8am...and I don’t want to raise the morning dose to 7.5mg to "fix" the problem as that is like trying to close the stable door when the horse has already bolted some hours ago.  Especially when you know full well that the horse was a pretty wild one anyway and anything could happen!

Hope that you get your baby’s levels back the normal ranges...so what have they said they are going to do about the over suppression?

I have an abstract somewhere about this--I was printing a copy off last night to send to Ash’s Doctor so I’ll dig it out and put it on this thread when I find it on Pub Med.

Take care

Anne-Marie