SandraI am worried about this now. I just need to add it to my list :)
I had heard about this adrenal rest tissue. I thought though that this happened when the person was not treated with medications. How old was your son when he was diagnosed and what kind of CAH does he have? Is this something that the doctor should be checking for at every visit. Would we be subjecting them to the exams that the girls have had such a hard time dealing with?
I am also wondering if they do have this tissue and if it is removed if they can be fertile again? I would hate to think that I missed something.
Thanks,
Sandra