Anne-Marie,

I agree with you!  Ultra sounds and BONE DENSITY  every 6 months! 

I think we all need to speak up more for our children. I have gotten lax and I guess this is my wake-up call. 

It’s just like anything else, if we don’t inform the doctors of how strong our concerns are they won’t do anything.  And if they still won’t do anything we need to demand and fight for these tests. 

Our children can’t speak for themselves, so if we don’t speak up no one will ever hear us.

Diane