Thank you so much for your reply. I appreciate you taking the time to include so much of your son’s history. I think it is very interesting that your son stayed on his doses for so long before changing. I think that is one of my son’s problems. We end up changing doses every dr. visit. I need to get better about saying, "no - he is fine on this dose." (Actually I did refuse a dose increase in June).

Jack has a dr. appt on Monday. I’ll find out his bone age and his July blood levels. If his bone age in on track and his blood levels continue to show oversuppression I am going to have to insist we reduce his dose. Then I’ll get them to try and stick to it for awhile (as long as his bloodwork continues to show oversuppression).

This is such a frustrating condition.

Thank you again for your response. I love hearing from parents with older kids that are doing well. I know we’ll get there someday.