robertaopps... it’s don’t nag!! Well - maybe nag alittle. It is hard not to and worry and be a nga - but relax. I thought I would have to run around with an umbrella over my salt wasting CAH kids’ head in the summer but he plays outside in the heat and is fine.
And do learn all you can about CAH. Did you know the parents? Won’t they consider getting the DNA genetic testing for CAH.
And according to the Fact Sheet (Dr. Maria New’s) it can test for only a certain types of CAH - the most common ones - classical and non-classical (classical salt wasting; and on-set CAH or non-classical - which can occur anywhere from birth to adult; but the classical salt wasting is at birth).... the test is 95% accurate. Also test her blood (with or without the parents) - genetic testing so that she knows for sure what type of CAH use has for sure.