I just found this web site. I have a 10 month old boy with cah (salt wasting) he was diagnosed at 7 days old and has not actually had a adrenal crisis yet. I am scared to death.
I believe we have a great endocrinologist, but they still have not provided us with an injection kit. Yesterday he was diagnosed with kidney reflux disease ( they say completely unrelated), now I am terrified that he will get sick.
How do I cope?????