We are presuming that the baby does not take florinef though arn’t we here? 

I assumed that the baby has never been given florinef in my last post  after  reading Cindy’s post and  re-checking Jude’s first post.  When I did I noted that she stated her baby takes Hydrocortisone and sodium chloride.  Florinef was nowhere to be seen unless Jude omitted this by accident.  

So if the baby has not been dosed florinef up to the age of two, and the Doctor only prescribed hydrocortisone and sodium chloride (given that hydrocortisone has some  salt retentive properties) why would the baby need florinef now?  Nothing has changed where aldosterone replacement is concerned has it?  The baby has is just moving to a normal diet and off the commercial baby foods that’s all.  Because the baby is likely now to get salt in it’s diet from Mum’s cooking and is not lacking there is no need to therefore dose with sodium chloride is there?  Ashley was severe swcah also, so I am very aware of his ability to retain salt and how aldosterone works, but if a child has not had florienf since birth, they are very unlikely to need it at two years.  You cannot keep a child on sodium chloride forever, and if the child needs buckets of salt to retain any decent amount, then obviously they had a need for florinef right from the word go and were never given the right treatment.  If baby has been taking Florinef--it is obvious they will need that as a continued therapy.  In fact I am wondering why baby has had sodium chloride and not been given florinef up to now really.  It just seems strange to bombard with salt and expect the bay to retain it without replacing the deficiency causing this also.    I think basically other’s must have perceived what I wrote wrongly because I didn’t mention a change in med’s i.e. stop Florinef and Sodium Chloride herein.  I just mentioned at the top there that there was no need for soium chloride from aged two due to a normal diet (which contains adequate salt).  There is a difference in these two things.  I don’t imagine anyone who has a swcah child is still giving them sodiumn chloride now after the age of 2-3.  We all are advised to just stop the sdoium chloride when normal salt diet is introduced.  

If your having to give a child buckets of salt then that needs to be looked at and florinef scripted OR if they are ON Florinef-the dose raised.  Otherwise when dosing with so much salt--what effects do you supposethat has on kidneys?