Jude,

It must be frustrating not having easy access to the medications you need!  We are very spoiled here in the U.S.

My son with salt-losing CAH is almost 3.  I sometimes salt his food but I don’t worry about it too much.  As long as your child is on a sufficient dose of the florinef then Anne Marie is right--she will get sufficient salt in the food she eats.   When my son was about 18 months old his doctor reduced his florinef dose from 2 tablets to 1 tablet.  My son got quite sick because he wasn’t retaining enough salt on that dose.   He now takes 1 1/2 tablets a day.  So if possible, try to monitor if the dose is sufficient with a plasma renin test.

Yes, the cortef is a replacement for the hydrocortisone (it acutally is a form of hydrocortisone).  Florinef and cortef are the only medications my son is on and I think that is typical.  If you run out of the florinef again your daughter will probably need a very large amount of salt to prevent her from having a crisis again.  You can also increase the cortef which will help her to retain salt, but I would only do that with the advice of your doctor.  Hopefully you won’t have any problems getting these medications in the future!

I hope your daughter is doing well!