If it´s 17hp then normal numbers are 2-5 I think. Just wanted to ask why you are talking about the PKU numbers? Is it the newborn screening you are talking about? Just curious because my 9 year old son has both CAH and PKU and so far we have found no one else in the world who has those two togeather. But I take it as your kid does not have PKU since those numbers are normal and not PKU patients numbers.

Think my son was tested about 6-700 in 17hp when diagnosed but the numbers go down rapidly after starting on med.

Good luck.

Erla Einarsdottir

Iceland.