our son is 10 months old and was diagnosed with having cah at three months of age, not because he was having any problems or crisis.  but because he had an slightly elevated newborn screening test.  my husband and i requested that he be seen by the endo and that is when they did a acth stimulation test.  (my husband has cah also)  for there they put my son on meds and we had genetic testing done.  it confirmed that he had cah, but that he had nonclassic cah.  which many of times doesn’t need treatment unless they are having signs and symptoms of the condition.  so they weaned my son off his meds having he had a low 17-ohp.  we took him to see dr. new in new york and she conformed that my son didn’t need to be on any meds at this time.  we just monitor his height, labs and any other signs that he might have that indicate that he might need meds. 

so there are many of children that don’t need meds.  just because our son isn’t on any meds doesn’t mean that he doesn’t have cah, he still has two mutations which makes him affected.  there are different levels of cah, swcah, svcah, and nccah.  there are many of times that children don’t get diagnosed till age 5, 7, 10 and up that doesn’t meant that they didn’t have cah till they were diagnosed.  they had cah all along, they just weren’t diagnosed.

i hope that this helps you, that they are children that are diagnosed but don’t need meds.  the newborn screenings were developed to pick up swcah patients only, but some times it picks up other children.

tonya