I live in Northern Virginai (Alexandria, VA).  I have two children with CAH. I can help you.  Call me or email me = rbertpreston@aol.com 703-370-4611 at home; 703-697-7357.  CARES is a non-profit organization that can help. www.caresfoundation.org call 1-866-227-3737.  They offer medical scholarships for families to travel seeking specialist care.  I also composed a list for Kelly to post on her web site  - for sample Northwest Airlines offer - miracle flights (go to their web site) - no income guideline - you do not need to be low-income.   Here is also some other places to contact (please contact CARES (Kelly) has other information to help you):

LODGING COSTS

Ronald McDonald House Charities, 1 Kroc Drive, Oak Brook, IL 60523, Ronald McDonald House Charities provides comfort and care to children and their families by supporting Ronald McDonald Houses in communities around the world and by making grants to other not-for-profit organizations whose programs help children in need. Children requiring medical treatment away from home and their families, can stay at the Ronald McDonald Houses at a nominal daily fee. Ronald McDonald House Charities has a network of over 150 Local Charities serving in 27 countries.

National Association of Hospitality Houses (NAHHH), 4915 Auburn Ave #303, Bethesda, MD 20814-2636 800-542-9730 317-288-3226 NAHHH provides a home-like environment to individuals who are getting medical services away from home. They help provide a "place to stay" for the patient and/or families. They help people find organizations such as Ronald McDonald Houses, American Cancer Society’s Hope Lodges, Fisher Houses as well as grassroots programs run by churches or volunteer groups. They have a directory of places which is published annually.

Children’s Disability Relief Fund , 402 Pennsylvania Avenue, Freeport, New York 11520 516-377-1605; 516-377-3978 (Fax ) The mission of the Disabled Children’s Relief Fund (DCRF) is to promote the growth and development of children, ages 0 - 18, with disabilities, increase public awareness, and support efforts that strengthen compliance with state and federal laws for the benefit of children with disabilities.

GET FREE AIRLINE FLIGHTSAirlines have been helping families going for medical treatments:

Miracle Flights for Kids , 800-FLY-1711, 2756 N. Green Valley Parkway Suite #115 Green Valley, Nevada 89014-2100 Volunteer pilots flying children to hospitals across the country for specialized medical care. NO limit to flight requests and NO CHARGE for services!!

Airlife Line, AirLifeLine National Office, 50 Fullerton Court, Suite 20, Sacramento, CA 95825, 877-AIRLIFE (toll free) 916- 641-7800, 916- 641-0600(fax) staff@airlifeline.org Web: http://www.airlifeline.org AirLifeLine is a national non-profit charitable organization of over 1,000 private pilots who fly ambulatory patients who cannot afford the cost of travel to medical facilities for diagnosis and treatment. Pilots donate their time, aircraft and fuel to make this air transportation service totally free of charge for patients who qualify.

National Patient Air Transport Hotline 800-296-1217 This service will help people find free or reduced rates for air travel for medical purposes. NPATH refers families to the service that best fits their needs and situation using updated directories and information on all known patient long-distance air transport options.

Hope Air (formerly Mission Air), Procter & Gamble Bldg., 4711 Yonge St., North York, Ontario M2N 6K8 Canada, 877-346-HOPE (4673) 416-222-6335 www.hopeair.org Hope Air’s mission is to fly people from Canada to medical facilities outside of their community. It is targeted to help families with a financial need, with an appointment. $25 fee. The World Life Foundation, P O Box 571, Bedford, Texas, 76095 800-289-5433 817-282-1405 817-285-0216 (fax) Helps parents who need travel assistance for emergency medical conditions and pays for car rentals. No income guidelines.