Anne-MarieI just posted to add further about cushings as there seems to be some misunderstanding about that and temporary increase of steroid in illness.
Cushings takes many weeks or months of overdosing with steroids to develop. It doesn’t even come into the stress dosing that we have to give our children. Excess cortisol is out of the system within 8 hours. That means, when you go back down to the normal doses again and have decreased, the only cortisol in your child’s body is what should be there. They may look puffy for an hour or two after larger doses--but in my experience, as at the latest illness, Ashley had up to five times more than his normal daily dose. 75mg per day to deal with the illness/injury that he had, and it wasn’t even touching the sides--and hardly helping him until they upped it to 100mg per day spread out over four doses. Point is, children can get so severely sick or injured, that it is those instances where they need large doses, and you have to give them and be totally confident in what your doing. Otherwise your child’s illness may be prolonged unnecessarily as Ashley’s was.
Cushings would not occur in the cases where you double, triple or x5 the dose---because like I say, the excess is exreted in a short time thereafter. It is when the doses are prolonged and over many weeks and months that that develops. They can never know exactly how much cortisol the child will need in sickness and injury. That is why they always advise to err on the side of caution and be prepared to give more. It’s always better and safer to do that than worry about the side-effects of cortisol that may occur for a few hours after. The Doctor that is not encouraging this and seems to think cushings will be an issue has no understanding of CAH and how a child metabolizes hydrocortisone in my opinion.