Hi Janet

I live in Bedfordshire, but my son is under Great Ormond Street - is your daughter under GOSH too?   I am the chairman of the CAH Support Group (UK) and am currently arranging next years conference which will be in London with the GOSH/Middlesex team as speakers.  Please feel free to visit our website www.cah.org.uk and request a free information pack, which provides literature on the condition, a therapy card, leaflet for schools, details of what we do, current research projects, members personal stories, future events etc.  I hope your daughter is progressing well and please feel free to e-mail me if you have any questions.