Hi Sue,

Kelly Leight, owner of the CARES Foundation, has a grade school aged daughter with non saltwasting as well.  She can be reached through her website at http://www.caresfoundation.org.  She can also hook you up with other non salt wasting moms.  You can also see on her site the ratios (prevalence) to some backgrounds that non salt wasting CAH has.  Meaning that it can be more people than you think have it if you live in a densely populated area like New York.

There are several other links here as well, I just thought you’d be specifically interested in that one because she started CARES as a result of her daughter’s non saltwasting (non classical CAH) diagnosis.

Blessings,

AdinaH