Dear Sue:

I have simple virilizing CAH, I’ve read that 75% of the people with classical CAH are salt wasters and the other 25% are simple virilizers. It’s interesting that you stated that 14% of the cases are non-salt wasting, does you son have simple virilizing CAH or does he have Late onset CAH which is the milder form of classical CAH ? And like you said,"It doesn’t make it any less scarey."  I know you were looking for a parent but I do fit the part of someone that is much older, I’m 32..... so I’m alot older (lol).

Please don’t be scared, as you can see from this board you are not alone.  : )

 

Aimee