MacarenaHi, My 2 months old son, Chresten, has just been diagnosed with SWCAH. We have recovered from the initial shock of almost losing him... When he was 25 days, and after 2 terrible weeks of vomiting without knowing why, he stayed at the Intensive Care Unit when we were at the hospital to do some tests. The newborn screening didn’t detect it...
He is feeling fine now, gaining weight and smiling, after a month in the ICU. Great boy. I see a lot of activity and information everywhere else but Spain... and I was wondering if somebody has any contact of any type (doctors, families....) with experience in CAH here, so that I don’t feel that alone! I’m married to a danish, so any contact in Denmark will also be great.
Many thanks.