MicheleI’m right there with Natalie. I have 2 SWCAH children, grades 3 and 5. I drive them to and from school every day and always have. I too checked with the director of school transportation and there was no plan they could offer me. Although both children wear medic alert bracelets, our county-wide ambulances DO NOT CARRY any kind of injectible steroid. (Another battle I can not win). So the best they could do is get them to the local hospital ER where they too have no idea what to do. Atleast when they are with me, I have a clearly marked medicine kit in clear view and medic alert tags hanging in the car. If I were unable to help them, hopefully a medical person would see the kit and help them. As for field trips, I usually go, but when I can’t, I place them under the care of another parent /friend who knows how to give the shot.
There are no guarantees, and they are always somewhat more at risk than the non-CAH child. So I take the position of caution, teach them as much as possible about their condition, learn which parents I can entrust their care too, let them lead a normal but guarded life, pray, and hope for the best.
Good luck to all!
PS In case you are thinking I am a bit too over-protective, my ten year old plays on a regional travel soccer team. I just make sure that I am at every game!