re: re: what do you think of these levels?
Sep. 8th, 2002   6:27pm
Ashley had one third more than his average daily dose last year after a period of under treatment.  Taty has been diagnosed later at aged 10 or 11 (sorry forgot age Michelle) and only recently (within last few months) and they perhaps needed to bring her levels back down before they can re-assess her proper daily dose?  When kids are first diagnosed they usually err on the higher side and then drop back.  well this was what they did when Ash was diagnosed.  They gave large doses to bring him back to normal ranges and THEN they tapered back.  It took two weeks in hospital.    Ashley is severe SWCAH diagnosed at 12 days though, and his average daily dose is only 15mg per day per m2.  I put Taty’s weight and height into the body mass fields the other day on Hills Body Mass Calculator and she came out at around 18.5mg per day going by 15mg per m2 for a SWCAH!  So she may need less later on, but they will need to see several consistent blood tests were those levels are getting lower before they decide to taper back some.  Taty is taking  22.5mg per day at the moment for that reason I feel.  Her labs at the moment are low but within the normal ranges if they are in ng/dl for andro and nmol/L for 17 OHP.   Perhaps next months tests will give a better idea?  She could definately lose half of the afternoon dose as that is somewhat high, but in illness or undertreatment, Doctors advise giving the dose consistently throughout the day until things return to normal or the child is well.  They will no doubt cut back at some point, but that is why all the doses are the same at the mo ent I would say.
Anne-Marie
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